Journalists' Guide

Examples of newspaper headlines

Journalists’ guide for reporting on alcohol harms in pregnancy and Fetal Alcohol Spectrum Disorder (FASD) in Australia

What is FASD?

Fetal Alcohol Spectrum Disorder (FASD) is a diagnostic term used to describe the range of impacts of prenatal alcohol exposure (PAE) on the brain and body.(1) FASD is a lifelong neurodevelopmental disability that can affect many aspects of a person’s development, health and quality of life. People with FASD can experience challenges in daily living and may need support with motor skills, physical health, learning, memory, attention, communication, emotional regulation and social skills to reach their full potential. People with FASD have unique strengths, abilities, interests, and support needs.

Children playing at a playground

The term FASD has evolved to reflect the full spectrum of physical and functional effects resulting from prenatal alcohol exposure and acknowledges that neurodevelopmental impairment may occur in the absence of physical features. The term Fetal Alcohol Syndrome (FAS) refers to a subset of individuals with FASD who have physical features (characteristic facial features, growth failure and birth defects) in addition to neurodevelopmental impairment and is not commonly used in Australia.

FASD is estimated to occur in about 3.6% of the general population in Australia, with higher prevalence rates in some population groups, including young people in contact with the justice system and out-of-home care.(2)

Why language matters

The way journalists communicate about FASD matters. Language can either reduce stigma, promote dignity and encourage help-seeking, or unintentionally reinforce shame, blame and misinformation.

Reporting that focuses solely on deficits or negative experiences can contribute to stigma by implying fault, highlighting limitations without context, or portraying people with FASD as defined only by their challenges. Similarly, reporting that focuses exclusively on maternal responsibility may overlook the broader social, cultural, and structural factors that influence alcohol use during pregnancy.

Woman and child outdoors

Strengths-based, person-centred language supports dignity, reduces prejudice and helps the public understand FASD within its broader contexts surrounding alcohol use in pregnancy, decreasing stigma. Accurate and respectful reporting can increase public understanding while supporting inclusion, empathy, and access to care and support.

This guide, developed by people with lived experience of FASD, journalists, clinicians and researchers, offers practical tools to assist journalists and health communicators report on alcohol harms in pregnancy and FASD with accuracy, respect and compassion. It promotes positive framing and inclusive language that recognises the expertise of people with lived experience, encourages informed discussion and supports hope and inclusion.

Examples of headlines from the press

It is important to report on FASD as a lifelong neurodevelopmental disability and a public-health concern — not as a moral failing or a simplistic consequence of individual behaviour. Headlines and framing that may increase stigma should be avoided.

Examples of poor headlines
(based on published examples) include:

  • FASD epidemic fuelled by irresponsible mothers
  • Pregnant women ignore warnings and risk their babies' lives
  • Tragedy begins with a mother's choice

Examples of alternative headlines:

  • Experts call for better support to prevent prenatal alcohol exposure and FASD
  • Why health guidelines recommend avoiding alcohol during pregnancy
  • Why families and communities matter in supporting alcohol-free pregnancies

Stereotypes about prenatal alcohol exposure and parenting can be reinforced through sensational or simplistic reporting; careful language choices can counter stigma rather than amplify it.(3)

How reporting matters to me…

Sharing my story with the media is always an act of hope and vulnerability. When FASD is reported with care, accuracy and respect, journalism becomes more than reporting or storytelling; it becomes a powerful tool for reducing stigma, improving public health and helping people access understanding and support.

Jessica Birch FASD Advocate

Informed reporting matters to me because FASD is a whole of community issue. It needs broad but balanced coverage to better support those who live with FASD and to empower families to make healthy choices in pregnancy.

Sophie Birth Mother

Questions journalists should ask before publishing

  • Does this story increase understanding of FASD?
  • Does this story include perspectives of people with lived experience?
  • Does this story avoid blame, shame and stigma?
  • Are the impacts of FASD explained accurately and respectfully?
  • Have strengths, supports and opportunities been represented alongside challenges?
  • Does the story acknowledge the broader societal context surrounding alcohol use in pregnancy?

Dos and don'ts

Use language that puts the person before the diagnosis.

Say: “Individual living with FASD (Fetal Alcohol Spectrum Disorder)” or “A person living with FASD”.

Avoid “FASD child/children/kids”, “victim of FASD”, “suffering from FASD”.

Why? Person-first language emphasises dignity and humanity, reducing stigma.

Use language that supports understanding of Fetal Alcohol Spectrum Disorder (FASD).

Say: “FASD is caused by prenatal exposure to alcohol, which impacts brain and body development in an unborn child, with lifelong impacts.”

Avoid using the term ‘the spectrum’ on its own (this is often used to describe Autism Spectrum Disorder and can cause confusion).

Why? Using terms like ‘the spectrum’ can reduce clarity and understanding.

Acknowledge that there are many reasons why women use alcohol in pregnancy, such as lack of information on harms, misinformation, lack of pregnancy recognition or alcohol dependency.

Say: “FASD is caused by prenatal exposure to alcohol”, “FASD is caused by alcohol exposure during pregnancy”, “FASD is caused by exposure to alcohol before birth”.

Avoid “Irresponsible mothers”, “poor choices”, “drinking mothers”, “mothers who choose to drink”.

Why? Blaming language perpetuates shame, reinforces stigma and discourages help-seeking.

Emphasise solutions, support systems and positive possibilities.

Say: “People with FASD have unique strengths alongside their challenges.”

Avoid sensational or stigmatising language, “damaged”, “broken”.

Why? Balanced messaging fosters understanding, dignity and empathy.

Encourage help-seeking and highlight the benefits of assessment, diagnosis and appropriate support.

Say: “Many people can benefit from help to be alcohol free when planning or during pregnancy.”

“With early diagnosis and support, people with FASD can lead fulfilling lives.”

Avoid narratives that focus solely on problems.

Why? This promotes a focus on health, wellbeing and access to services.

Use evidence-based facts from reputable sources such as the NHMRC’s Australian Guidelines to Reduce Health Risks from Drinking Alcohol and peer-reviewed research.

Say: “To prevent harm from alcohol to their developing baby, people who are pregnant or planning a pregnancy should not drink alcohol” (see the ‘Every Moment Matters’ campaign).

“There is no established safe level of alcohol consumption during pregnancy.”

Avoid unverified claims and outdated advice.

Why? Accurate, consistent information supports informed public understanding and aligns with current public health guidance.

Acknowledge broader influences on alcohol use such as poverty, trauma and addiction.

Say: “Prenatal alcohol exposure is a complex issue influenced by many factors.”

“FASD is potentially preventable”.

Avoid oversimplified statements like “FASD is 100% preventable.”

Why? This phrase ignores systemic factors and can stigmatise mothers.

Where possible, promote the importance of planning pregnancies and the value for both parents to stop drinking, as part of preconception care.

Say: “When planning a pregnancy, both parents can support each other to stop drinking.”

Avoid messaging that places responsibility solely on pregnant women.

Why? Planned pregnancies can avoid early alcohol exposure. Emerging evidence shows that fathers' alcohol use can affect fertility as well as the baby’s health.

Recognise that alcohol use reflects broader socio-economic and community contexts.

Say: “Partners, families and communities play a vital role in supporting alcohol-free pregnancies.”

Avoid framing alcohol use in pregnancy as solely the responsibility of pregnant women.

Why? Shared responsibility supports awareness and helps reduce harm at a population level.

Highlight the influence of alcohol marketing, availability and industry practices.

Say: “The primary remit of the alcohol industry is to be profitable.”

Avoid emphasising that individual behaviour change is the only solution to alcohol harms.

Why? Industry practices contribute to alcohol‑related harm, including alcohol consumption during pregnancy and FASD.

Report on FASD as a health issue that affects all sectors of society.

Say: “Wherever there is alcohol consumed, there is FASD.”

Avoid narratives that reinforce blame, discrimination or racism.

Why? Misrepresentation contributes to stigma and is inaccurate.

Use inclusive images depicting a diverse range of people, families and communities participating in everyday life that promote healthy behaviours. Use de-identified images unless you have consent.

Avoid images of isolated or naked pregnant bellies, harmful alcohol use or imagery that causes distress. Avoid images depicting Aboriginal people or stigmatised groups.

Why? These visuals can induce guilt, oversimplify the issue and stigmatise certain groups.

Prioritise perspectives that reflect lived experience, agency and strengths.

Ask: “What supports have made the biggest difference for you?”

“What would you like people to understand better?”

Avoid framing experiences in ways that imply personal failure or irresponsibility.

Why? This approach humanises reporting and avoids reinforcing stereotypes.

Say: “When breastfeeding, not drinking alcohol is safest for your baby”

“When breastfeeding, it’s important to ensure the breastmilk your baby drinks is always alcohol-free.”

Avoid statements unsupported by evidence, such as ‘Alcohol in breast milk causes brain damage in infants.’

Including the voices of people with lived experience of FASD

Including the voices and perspectives of people with FASD in media reporting is essential for building public understanding of their strengths, needs and diverse experiences. People with lived experience include those who are living with FASD themselves, as well as those who care for a child or adult with FASD, including biological mothers and their partners. Real-life stories can reduce stigma, challenge stereotypes and highlight the systemic barriers people face—such as limited access to support, missed or delayed diagnosis and a lack of FASD-informed services.

Professionals – clinicians, teachers and justice professionals – who support people with FASD and their families may both perpetuate stigma and be affected by stigma. Lived experience is not an ‘add-on’; it is central to ethical and accurate reporting. This means valuing experiential knowledge, involving people with lived experience early in story development and using their insights to shape framing, themes and language.

When interviewing people with lived experience, journalists should:

  • Seek out reputable networks such as NOFASD Australia or community advocacy groups, which can help connect journalists with people with lived experience of FASD who feel safe and supported to share their stories.
  • Ask what the person needs to feel safe and supported during and after the interview.
  • Seek informed consent; ensure individuals understand the potential psychological, social and long-term impacts of sharing their experiences publicly.
  • Be clear about the scope and purpose of the story, including how contributions will be used and discuss any boundaries the interviewee would like to set.
  • Offer accessible and flexible interview formats (e.g. written responses, breaks, or visual supports), recognising the diverse cognitive and communication needs of people with FASD.
  • Listen carefully and avoid assumptions or generalisations. Let the person with lived experience guide the narrative and check their preferred terminology for describing their experiences.
  • Offer interviewees an opportunity to review quotes or key sections before publication to ensure accuracy and respectful representation.

Including the perspectives of Aboriginal and Torres Strait Islander people

To include the perspectives of Aboriginal and Torres Strait Islander people, journalists should engage with appropriate organisations and community representatives. These may include the National Aboriginal Community Controlled Health Organisation (NACCHO), SNAICC (the National Voice for Aboriginal and Torres Strait Islander children) or your local Aboriginal Community Controlled Organisations (ACCO). Seeking guidance from these or similar organisations can support accurate, culturally informed and respectful reporting.

Resources

FASD Hub Australia – A national online portal providing research, clinical information, diagnostic resources and data on FASD in Australia.

NOFASD – Provides information, training and support for individuals and families living with FASD.

Australian guidelines to reduce health risks from drinking alcohol – Evidence-based national recommendations for alcohol use, including in pregnancy and preconception.

Every Moment Matters – A national health campaign providing clear, accessible information about alcohol and pregnancy, including tools for health professionals and the media.

Indigenous FASD Framework – A strengths-based framework developed with Aboriginal and Torres Strait Islander communities, focused on prevention, support and culturally safe approaches to FASD.

Learning with FASD – Provides trusted, evidence-based resources to help educators understand and support children with FASD in Australian schools.

Mindframe – Supports safe media reporting, portrayal and communication about suicide, mental health concerns, alcohol and other drugs.

References

1. Popova S, Charness ME, Burd L, Crawford A, Hoyme HE, Mukherjee RAS, et al. Fetal alcohol spectrum disorders. Nature reviews Disease primers. 2023;9(1):11-.

2. Tsang TW, Rosenblatt DH, Parta I, Elliott EJ. Estimating the Prevalence of Fetal Alcohol Spectrum Disorder in Australia. Drug and alcohol review. 2025;44(5):1522-5.

3. Robards FJ, Medlow S, Elliott EJ. Media portrayals of alcohol use in pregnancy and fetal alcohol spectrum disorder: A scoping review. Alcohol, clinical & experimental research. 2025;49(11):2396-411.

Acknowledgement

This guide was developed by FASD Research Australia NHMRC Centre of Research Excellence in partnership with:

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    Acknowledgement of Country

    FASD Hub Australia acknowledges Aboriginal and Torres Strait Islander peoples as the Traditional Custodians of Country throughout Australia, and we recognise their connections to land, water and community. We pay our respect to their elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples.

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