Publications

The consent and community engagement process for research with Indigenous communities is rarely evaluated. Research protocols are not always collaborative, inclusive or culturally respectful. If participants do not trust or understand the research, selection bias may occur in recruitment, affecting study results potentially denying participants the opportunity to provide more knowledge and greater understanding about their community. Poorly informed consent can also harm the individual participant and the community as a whole.

Prenatal exposure to alcohol has adverse ramifications on foetal development resulting in developmental abnormalities and major congenital anomalies. Experimental studies have documented effects on kidney structure and function among offspring exposed to alcohol during foetal life; however, human evidence is scarce. The study aimed to determine the development of CKD among a cohort of 30-year-old Australian offspring whose mothers reported consumption of alcohol during pregnancy. The study sample comprised 1626 offspring of the Australia cohort study (MUSP) whose serum creatinine was assessed at 30 years of age and CKD was categorized from stage 1 to stage 5 based on their level of eGFR following the CKD-EPI definition.

The Western Australian Alcohol and Drug Interagency Strategy 2018-2022 provides a guide for government and non-government organisations as well as the wider community to prevent and reduce the adverse impacts of alcohol and other drug use in Western Australia. It references FASD.

Prenatal alcohol exposure (PAE) can lead to permanent disabilities, including physical, neurodevelopmental, and cognitive impairments, collectively known as fetal alcohol spectrum disorder (FASD). Individuals with FASD are at higher risk of legal issues, including detention. A FASD prevalence study in Western Australia included young people sentenced to detention. Diagnosing FASD requires a multidisciplinary assessment and confirmation of maternal alcohol consumption during pregnancy, which posed significant challenges in accurately assessing PAE for study participants.

Young people who were sentenced to detention participated in a FASD prevalence study in Western Australia. The diagnosis of FASD requires a multidisciplinary assessment and confirmation of maternal alcohol consumption during pregnancy. Obtaining accurate assessment of PAE for young people participating in the study was challenging.

This study examined the language skills of 98 young people sentenced to detention in Western Australia (WA), who participated in a cross-sectional study examining the prevalence of FASD. Language skills assessed using standardised and non-standardised tasks were analysed by the three major language groups identified: speakers of SAE, Aboriginal English and English as an additional language.