FASD Hub Australia Chair, Professor Elizabeth Elliott, contributed to the ABC’s recent investigation discussing the shortage of Fetal Alcohol Spectrum Disorder (FASD) assessment, diagnostic and management services in remote areas of Australia.
The article highlighted how the lack of FASD-informed services is resulting in some young people going undiagnosed and outlined the challenges this can bring for them and their families.
The article follows the story of a young teen with FASD called Scotty. Over the years, Scotty has received collaborative support from his family and school in the management of his FASD, and by all accounts he is thriving. Scotty – and his family’s – understanding and awareness of how his brain works differently as a result of prenatal alcohol exposure, has helped him in his day-to-day life and demonstrates how early intervention can result in positive long-term outcomes.
Scotty explains his aspirations of becoming a baker, an AFL player, and a good role model, whilst recognising there are other children in his town with FASD in desperate need of the same level of help.
As mentioned in the investigation video by ABC journalist Charmayne Allison, research shows an increased representation of FASD in Western Australia and the Northern Territory, where historic trauma and disadvantage can lead to increased levels of risky drinking. The Commonwealth has funded public FASD clinics in New South Wales, Victoria and Queensland but there are no similar clinics in the rest of Australia.
“What we want to see is a fair distribution of fundings to all states and territories so that no child misses out.” Professor Elizabeth Elliott AM
Assessment for FASD can be time consuming and involves a team of health professionals, but the benefits of a correct diagnosis cannot be underestimated, as people with FASD say that with diagnosis, comes understanding, and an improved quality of life. A correct diagnosis also allows people with FASD and their families to receive funding, have a management plan, and understand how to nurture their unique limitations and strengths.
Watch ABC News Australia’s investigation, Fetal alcohol spectrum disorder diagnosis is rare. With the right support, kids thrive.
